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Special Photo Evan's mother Lisa Matesevac, an audiologist, has read medical journals and other professional research to learn more about Prader-Willi Syndrome, which affects many parts of the body and typically leads to obesity, reduced muscle tone and mental ability.

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Evan Matesevac was diagnosed with Prader-Willi Syndrome as an infant, which typically leads to obesity, reduced muscle tone and mental ability.

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